Hello, my name is Justin. I am 24 years old, and I have Duchene Muscular Dystrophy (DMD). I found out I had DMD when I was only six years old. My 19-year-old brother Jayden also suffers from DMD. We went from crawling, walking, and running like regular boys to suddenly falling aimlessly and now becoming permanently wheelchair-bound. We wish we had the fortune of living normal lives like other young boys and adults. Instead, our disorder has caused our bodies to become progressively weaker which has ultimately left me paralyzed. Although we try to live life to the best of our ability, we cannot help but feel trapped in our own bodies as we are not physically mobile like others. It is nearly impossible for us to raise our limbs or to scratch ourselves – simple every day bodily movements. Sometimes the feelings of hopelessness and despair are unbearable. I lost a huge part of my childhood growing up as I was never able to play at the park or participate in sports. This has been detrimental to my upbringing and has prohibited me from reaching my full potential as an adult. This has been extremely psychologically traumatizing for me and my brother. My brother is five years younger than me and faces the same future ahead. I am worried and I feel helpless as my younger brother anticipates his grim future by watching what I am going through. It is not easy watching your own health decline, but it is even more difficult knowing your brother will have to go through the same hardships and suffering as you did.

 Muscular Dystrophy Canada has helped us tremendously. The funding we have received has helped us gain some independence by providing assistive technologies which has helped enrich our lives. Muscular Dystrophy Canada has provided us with mobility devices, home renovations, wheelchair van funding, and has supported us with social and educational resources. My family and other young people who suffer from neuromuscular disorders really need your help.


Devotion 2 Motion is a fundraising committee that is very special to us as it refers to the “2” of us, two brothers affected by this terminal condition. Our mission is to help enhance the lives of those affected with neuromuscular disorders by raising awareness and funding to provide ongoing support and resources through Muscular Dystrophy Canada. Donations help provide necessary funding towards research in the quest for a cure and it helps to develop new treatments improve children’s lives.

I hope you can join me at our fourth annual Devotion 2 Motion fundraising event for Muscular Dystrophy. It will be a night filled with fun, games, silent auctions, prizes, and dancing. There will be an Indian buffet dinner complete with appetizers and desserts for only $50 per person. Drink tickets will also be available for purchase at the event – 5 drink tickets for only $20! We will also be offering sponsorship packages which offers special perks – please see attached for more information. Come dressed to impress at the new and beautiful ARIA Banquet and Convention Centre located at 12350 Pattullo Place in Surrey, B.C. All proceeds will go towards Muscular Dystrophy Canada.

Devotion 2 Motion is asking local businesses in our community to donate prizes as a way to encourage attendees to our event. Anything you can donate to support our event will be deeply appreciated. We would be more than happy to come by to collect your gifts and receipts will be provided for cash donations of $20 or more. If you require any additional information, please contact the Volunteer Fundraiser at the number below. We can make a significant difference in the lives of those affected by neuromuscular disorders through the generosity of our donors and sponsors.

Thank you in advance for your support in creating a better life for me, my brother, and the children affected and to help put a smile on everyone’s faces – it does not always take a big commitment to make a big difference.


Sincerely,

 Justin

Justin's Story