Hi, my name is Jayden, and I have Duchenne Muscular Dystrophy. I was diagnosed with this disease a few days after my older brother, Justin, was diagnosed with the same disease. I have been trying to adjust to my illness for several years, and it is and has been very difficult for me as I am progressively becoming weaker every day. I am an outdoors guy who enjoys 4x4ing on a quad, working on cars, working around the yard and helping around the house. I enjoy sports such as hockey, wrestling and U.F.C. fights. I used to be able to play hockey when I could still walk but that stopped a few years ago. I wish I could walk again so that I could do all the things in my life that I want to do. But, unfortunately this isn’t possible, and I get really frustrated sometimes. I try my best to not let my disease hold me back but it is hard.
Justin, my brother, is 5 years older than I am, and he is a strong guy. I admire his strength and will. The thought of losing him makes me very sad and angry at the same time. It is also frightening knowing that I will go through all the same phases that he has gone through. It is hurtful for our parents and our younger siblings to watch the two of us deteriorate. We try to spend lots of time together and enjoy whatever time we have. We are lucky to be surrounded by great extended family and friends. Without their support and the support from Muscular Dystrophy Canada, our lives would be even more difficult.
This is why I hope all of you will come join us for our 4th annual Fundraiser for Muscular Dystrophy Canada. Thank you to all your donations and support. New and improved treatments are advancing and we are also coming closer to finding a cure for this devastating disease. Thank you for caring.
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